SSDI Trigeminal Neuralgia: Getting Disability Benefits for Severe Facial Pain

Trigeminal neuralgia (TN) feels like electric shocks running across one side of your face. The pain is sudden, intense, and can make everyday tasks feel impossible. Because the condition can shut you out of work, many people wonder if they qualify for SSDI. The short answer: yes, you can qualify, but you need the right paperwork and a clear story.

What Makes Trigeminal Neuralgia a Disability?

SSDI looks at two main things: how bad your symptoms are and whether they stop you from working. TN scores high on both. The attacks can last seconds or minutes, but they happen often enough to keep you from driving, eating, or talking without fear. Doctors usually diagnose TN with MRI scans, nerve tests, and a record of your pain episodes. Your doctor’s notes should explain the frequency, intensity (often 7‑10 on a pain scale), and how the pain limits your job duties.

Step‑by‑Step Guide to Filing an SSDI Claim for TN

1. Gather medical records. Pull every MRI, CT, neurologist note, pain clinic report, and prescription list. Include notes about medications you’ve tried—carbamazepine, gabapentin, or surgery—and why they didn’t fully work.

2. Get a functional assessment. A therapist can write a brief report describing how TN blocks you from standing, lifting, or even sitting for long periods. This helps the SSA see the real‑world impact.

3. Fill out the SSA forms. Form SSA‑16 (Application for Disability) and SSA‑3368 (Work History) are the basics. Be honest about when you stopped working and why. If you’re still trying to work part‑time, note the days you missed because of pain.

4. Submit a detailed personal statement. Write a short paragraph in plain language: “I get sudden, stabbing pain on the right side of my face about 10 times a day. The pain makes me drop my tools, miss client calls, and avoid driving. I’ve tried three drugs and two surgeries, but the pain still stops me from working full‑time.”

5. Follow up. After you submit, the SSA may ask for a consultative exam. Keep your doctor ready to talk about your TN symptoms and work limitations.

Most claims are denied the first time, so don’t get discouraged. If you’re turned down, you have 60 days to appeal. Use the denial letter to spot missing evidence—maybe a doctor's clarification on how the pain prevents you from using a computer or lifting a cup of coffee.

Remember, the key is showing that TN isn’t just a painful condition, it’s a barrier to earning a living. Clear, consistent medical records and a personal story that ties the pain to your job duties make the biggest difference. With the right documents and persistence, SSDI can provide the financial relief you need while you focus on managing your facial pain.

Trigeminal Neuralgia: Employment Challenges & Disability Benefits Explained

Explore how trigeminal neuralgia impacts work life, legal protections, and disability benefits like SSDI and SSI, with practical steps to get help.